Without the proper resources, youth are often subject to accept whatever a physician directs them to. Stay knowledgable about your health condition to ask the right questions and take the course of action desired. 

Find your disease and connect with a more specific community! Click here to get started. 

As not only a patient but a human being, an individual is entitled to proper and ethical healthcare services. Click here to read a detailed code of conduct required of physicians

Reach out to your healthcare provider about your desired needs, and if that is not possible, look into Genetic Alliance's iHope Genetic Health Program for clinical whole genome sequencing.